Alongside Rare Partners to defeat rare diseases - PQE Group Spain

Since 2016 PQE Group actively supports the non-profit association Rare Partners in the developing of new therapies and diagnosticians in the field of rare diseases. Indeed 1 out of 20 people will live with a rare disease at some point in their life, for this reason it is important to raise people’s awareness by talking about this […]

Together4RD position statement on collaboration between European reference networks and industry, Orphanet Journal of Rare Diseases

Partners — Rare Disease Research

Events — Orphan Disease Center

Specialist multidisciplinary input maximises rare disease diagnoses from whole genome sequencing

Rare Diseases expert group - FPM

PM360 2018 Innovative Division SCOUT-Rare Expertise Joint Venture from SCOUT and Rare Expertise

Paul Benninger - Alliance Director, Global Business Excellence - Alexion Pharmaceuticals, Inc.

11th European Conference on Rare Diseases and Orphan Products (ECRD) 2022 – EJP RD – European Joint Programme on Rare Diseases

European Conference on Rare Diseases 2024 - ERN-LUNG

Genetically Programmable Microbial Assembly

Members of the European Expert Group on Orphan Drug Incentives

Poland: Plan for Rare Diseases 2021-2023, Jolanta Dabrowicz